hsbest en color

In operation

Hidradenitis Suppurativa Registry (Acne inversa)

Establishment:

2017

Status:

Active

Operator:

Institute for Health Services Research in Dermatology and Nursing (IVDP);
Klinikum Dessau / EHSF

Lead:

Dr. N. Kirsten,
Prof. Dr. M. Augustin,
Prof. Dr. C. Zouboulis

Coordination:

Dr. med. F. Ohm

Indication:

Hidradenitis suppurativa / Acne inversa

Type:

Disease registry

Survey:

Web-based, Patient-App (in preparation)

Research question:

Course, therapy effects, disease burden, care characteristics

Centers:

22 Practices/Clinics

Number of patients:

645 (14.10.2022)

If your center is interested in participating in HS-Best, please fill out the HS-Best Registry Collaboration Form.

eCRF Preview

Doctor's Forms

Patient's Forms